36243 - Ehlers-Danlos Syndrome (Answered)

Hannah Bardell
To ask the Secretary of State for Health, what steps the Government is taking to raise awareness of Ehlers-Danlos Syndrome.

George Freeman

The Department has taken steps to increase public awareness of all rare diseases including conditions such as Ehlers-Danlos syndrome, through the implementation of the UK Strategy for Rare Diseases. The Strategy includes specific commitments to raise awareness of rare diseases.

The Strategy is currently being implemented across all four countries of the United Kingdom with progress monitored by the UK Rare Disease Forum. The first progress report by the Forum was published in February 2016.