38845 - Ehlers-Danlos Syndrome: Diagnosis (Answered)

Wendy Morton
To ask the Secretary of State for Health, how many cases of Ehlers-Danios Syndrome have been diagnosed in each of the last five years.

George Freeman

These data are not held centrally by the Department.

Ehlers-Danlos Syndrome (EDS) is a complex group of heritable disorders of connective tissue with an estimated prevalence of one in 20,000. As EDS appears in a variety of forms rates of diagnosis can be underestimated.