34325 - Anna Turley - 18-Apr-2016 (Answered)

Anna Turley
To ask the Secretary of State for Health, whether the postcodes for the addresses of mothers of babies born with congenital abnormalities are available on the British Isles Network of Congenital Anomaly Registers.

George Freeman

The National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) is operated by Public Health England. NCARDRS has legal permission to collect patient identifiable data without the need for individual consent. As part of this dataset, patient postcodes for individuals resident in England are recorded on the NCARDRS congenital anomaly database. Protection of individual patient data is paramount and release of this data, including postcode data, is strictly controlled.